Latest Foundation updates: NUCDF's October awareness outreach highlights Zoey's Story; the Foundation will attend the inaugural endowed memorial lecture honoring Cynthia Le Mons at Baylor College of Medicine in Houston this November; and the Foundation plans to provide $75,000 for a Baylor College of Medicine postdoctoral training fellowship targeted to begin in July 2028.
Email the Foundation Foundation News: October awareness · November memorial lecture · July 2028 fellowship — View Updates

A Future Built in Her Name

Medical education, UCD awareness, and a Fellowship created so the next patient has a better chance of being understood in time.

A New Chapter · 2026

The Fellowship now has a long-term future at Baylor College of Medicine.

The Zoey Zalusky Foundation was created to turn Zoey's story into action: greater awareness of urea cycle disorders, stronger medical education, and meaningful opportunities for future physicians to learn from rare and inherited disease.

In 2026, John and Renee brought a truck displaying Zoey's story and the UCD awareness message to the National Urea Cycle Disorders Foundation Family Conference in Memphis, Tennessee. It created a visible place for conversations about awareness, diagnosis, research, and the reason behind the Foundation.

John and Renee Zalusky standing beside the Zoey's Story UCD awareness truck
John and Renee Zalusky with the Zoey's Story awareness truck during the Foundation's 2026 UCD outreach.

After returning home from the conference, the Foundation received an extraordinary charitable gift. The generosity behind that gift will sustain the Zoey Zalusky Memorial Summer Research Fellowship for many years to come.

With long-term financial support in place, the Foundation can now focus fully on its mission. Beginning with the 2027 award cycle, Fellowship eligibility will be limited to medical students enrolled at Baylor College of Medicine.

The Foundation continues to carry Zoey's story into the medical community. On September 14, 2026, a Zoey's Story presentation at Baylor College of Medicine was a great success and was well attended by first-year medical students, with the Temple, Texas campus also participating via Zoom.

The plan changed. The purpose did not. The Foundation can now focus on carrying the Fellowship forward for years to come—and on helping create the physicians, researchers, and advocates who may change the outcome for the next Zoey.
Explore the Fellowship → See Foundation Outreach →

A focused mission with a longer horizon.

The Foundation's work remains centered on Zoey's life, the disease that was not diagnosed in time, and the belief that education and exposure can change what happens for another family.

Memorial Summer Research Fellowship

Support a Baylor College of Medicine student through a summer of metabolic-disease research and clinical experience, beginning with the 2027 award cycle.

UCD Awareness

Help more people recognize urea cycle disorders, understand the danger of hyperammonemia, and know where to find trusted resources and community.

Zoey's Story

Keep Zoey's life—not only her diagnosis—at the center of the work, so the reason for the Fellowship and awareness effort is never reduced to a statistic.

The Foundation does not actively solicit public donations.

From the beginning, John and Renee intended to provide the Foundation's support through their own work rather than ask others to give. The substantial gift received in 2026 changed the financial need behind that plan and created long-term support for the Fellowship.

Those who wish to support the broader UCD community are encouraged to learn about the National Urea Cycle Disorders Foundation and the families, research, education, and advocacy it serves.

Visit NUCDF.org ↗